New registry offers insights into quality of life for adults with congenital heart disease

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Children's National Hospital Oct 16 2024 For the first time, adults living with congenital heart disease (CHD) now have valuable insights into their long-term quality of life through data from the Congenital Heart Initiative (CHI). CHI is the nation's first and largest patient-focused registry for adults with CHD and released its first study involving over 4,500 participants from all 50 states.  This research, published today in JAMA Network Open , marks a significant step forward in making

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