Sky News met with Shelley Mclean, who told us that every night is a sleepless one just to keep her 11-year-old daughter alive. Missy was born with a rare genetic condition that affects her breathing, digestion and movement. New data shows access to this care is deeply inconsistent across England, creating a postcode lottery that leaves many families struggling to survive without the help they require. We asked government minister Sarah Jones why the NHS is not providing support to Shelley, and