Desperate LI dad begs for funding as 5-year-old son battles extremely rare genetic disorder
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A desperate Long Island dad is begging US lawmakers to restore long-stalled federal money to continue funding the only lab he says is capable of treating his 5-year-old son’s extremely rare genetic disorder. Andrew Jedlicka, a New York University business professor and father of three from Merrick , has been taking his youngest child to the center in Long Island City, Queens, for the past five months to receive a new experimental treatment he said could fully cure his son. The boy, whose dad
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