For many 15-year-old boys, their days consist of running about after mates, playing football, and getting into mischief - but life looks pretty different for Harley Harris. In 2015, Harley, then just a young boy, became one of just 25 people worldwide diagnosed with an incredibly rare condition called spondylocarpotarsal synostosis. The rare genetic skeletal disorder impacts the development of bones throughout the body and can lead to lordosis, an abnormally curved lower back, scoliosis,