A disease like chronic fatigue syndrome , also known as myalgic encephalomyelitis (CFS/ME), can fundamentally change a person's life. Researchers at Iowa State University have now collected the memorial records of 505 people who died with CFS/ME to paint a picture of what life is like for millions of patients worldwide. The team's hope is to gain "a deeper understanding of the lived experiences and deaths of those with ME/CFS." In total, four major themes emerged from the words of family and