Family racing against time to raise £2.5m to save teenager's life

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Harley, 15, was diagnosed with an extremely rare genetic disorder affecting his spine, hearing and vision. His mother, Kelly, reveals the devastating reality facing her 15-year-old son without the £2.5m surgery in New York that could save his life. SUBSCRIBE to our YouTube channel for more videos: http://www.youtube.com/skynews Follow us on Twitter: https://twitter.com/skynews Like us on Facebook: https://www.facebook.com/skynews Follow us on Instagram: https://www.instagram.com/skynews Follow

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