Emotional Jesy Nelson reveals what 'really breaks her heart' about SMA testing

Ana Maria Rus

Jesy Nelson has pointed out a sad fact behind spinal muscular atrophy testing. The Mirror have joined Jesy in calling for all UK babies to be checked for SMA at birth as early diagnosis is key to successful treatment. Jesy's twins Ocean Jade and Story Monroe have been diagnosed with SMA, a condition which causes floppiness in the limbs, difficulty breathing and swallowing as well as delayed motor skills. Prior to 2019, babies with SMA type 1 often wouldn't make it to their second birthday, and

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